Personalised Navigation Workshops
One of the most challenging aspects of lipoedema is navigating the health care system to get a diagnosis, then piecing together fragmented information on how to manage lipoedema: compression and lymphatic health, diet and nutrition, non-invasive treatments and surgical treatments. If your doctor isn’t knowledgeable on lipoedema, we have to do all of this for ourselves.
After 2 years of intensive focus on getting a diagnosis, building a fantastic health care team around me, and trialling treatments to build a program that works for me, I’ve built a toolbox of research, templates and processes that can help you get a diagnosis, and get on the path to managing your lipoedema optimally. I’m not a doctor – this workshop isn’t about health advice. It’s about giving you the tools to help you quickly identify your healthcare team, get to a faster diagnosis, and start building your lipoedema management plan in partnership with your healthcare team. It’s about taking control.
Methodical Processes
Lipoedema is a complex condition that often requires a multi-disciplinary healthcare team for diagnosis, and defining a treatment program is often left to the patient. A methodical approach can cut through the noise and reduce wasted time, getting you to diagnosis and treatment faster.
Tools and templates
Leverage the hundreds of hours of research that I undertook for myself, with tools and templates that will make it easier to assemble your healthcare team, build a lipoedema management plan and integrate new daily habits. We’ll use templates such as a Healthcare Team Builder, a Symptoms Timeline and Medical History, and a Lipoedema Plan Builder.
One on one support
I’ve been on the journey myself and experienced the roadblocks, and the conflicting information. I have a background in the healthcare industry, but still I went through the frustration and overwhelm of working things out for myself. Leverage my experience, to make your journey easier.
What We'll Cover
Methods to identify the right healthcare professionals to reach a fast diagnosis.
The Diagnostic Odyssey for lipoedema sufferers is estimated by Lipoedema Australia to be around 10 years. Contributing to this is the lack of doctors with lipoedema training. Some are dismissive and misdianose the condition as simply ‘you need to lose weight’. Others are more dedicated to finding an answer but lipoedema isn’t even on their radar. I’ll show you how to research doctors, to find the one that will give you the best possible outcome.
Learn how to record your symptom timeline in a way that helps your medical team to give the best advice.
This is the single best thing I did. Trying to cram 12 years of seemingly ‘random’ symptoms into a 15 minute appointment just wasn’t working. So I prepared a package of documentation to help my doctors get the full picture before my appointment with them. Most read it and were ready with questions when I arrived for my appointment.
Learn how to wade through the research to identify what's relevant to you.
At times it’s overwhelming. Despite the ‘there’s not much research’ narrative from doctors, I found mountains, I sspent hundreds of hours over the last 2 years going through it. The reality is – some of it is old and outdated, some of it is new and inconclusive. Some of it is just literature reviews. But one thing is for sure – if you are a lipoedema sufferer, you have to do your own research. I’ll show you how to cut through the noise, identify credible research, how to determine which research is relevant to you.
Learn how to build and test a lipoedema management program in partnership with your healthcare team.
Implementing
Learn how to advocate for yourself.
With over a decade working in medical devices and more recently RWE, I’m lucky to have a good understanding of how to navigate the healthcare system, and how to keep pushing or look somewhere else when I’m not getting what I need. In our session, I’ll distill this into clear action points that you can use, to get yourself the treatment you need.
How to keep good records of the treatments and lifestyle changes that you trial.
Trying to recall a growing body of information and data as you move through your lipoedema journey becomes near impossible. Keeping good records means you have a neat package of information and data to hand over each time you see a new healthcare practitioner. The more information your healthcare practitioners have, the more they will understand your condition, and the more clarity they will have when helping you manage your plan.
FEEL LIKE YOU KEEP HITTING DEAD ENDS?
Take control of your lipoedema journey.
Is it lipoedema, or is it something else?
Lipoedema Australia estimates that it takes about 10 years for lipoedema patients to get diagnosed. If you in fact have lipoedema, that’s 10 years of the disease progressing and causing damage whilst you search for answers.
If you’re feeling overwhelmed, or struggling to work out which doctor you need to see, this workshop might be a good fit for you. I spent over a decade and a half working in the healthcare industry, but navigating my way through the lipoedema dagnostic and treatment pathway confounded me at times.
Learn how to find the right healthcare team.
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Learn how to get the best out of your appointments.
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Build and document your treatment program.
Learn a no-nonsense, systematic approach to building your lipoedema treatment program. A lot of what we do to treat our lipoedeam is trial and error to see if our body responds – trialling a new nutrition program, trialling compression or MLD.